DAISY NETWORK - PREMATURE OVARIAN INSUFFICIENCY

Who we are

Information and support for women and their families who are affected by POI

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Description

Premature Ovarian Insufficiency

Premature menopause, premature ovarian failure and/or premature ovarian insufficiency (POI) are terms that are generally used to describe the same condition, whatever the cause. The words are often used interchangeably, which can be confusing at first. There is no internationally agreed wording, however the newer term for the condition is premature ovarian insufficiency, which may describe it more accurately as the ovaries may not have irreversibly ‘failed’ and premature ovarian insufficiency has important differences from the ‘normal’ menopause which occurs at an average age of 51.

Age is the key factor, as early or premature menopause or POI is typically used to mean menopause that comes well before the average age of normal menopause — when you’re still in your teens, 20s, 30s, or early 40s.

Early menopause is used to describe menopause before the age of 45 and POI when it occurs below the age of 40.

What we do

Daisy Network was created to provide support to women, along with their families and partners, who have been diagnosed with POI. We understand that this diagnosis can feel incredibly isolating and often women are left confused and unsure where to go next.

  • Daisy Network provides our members with information and the latest research findings on various aspects of POI including:
    Hormone Replacement Therapy (HRT) and other treatment options
  • Managing the longer term health implications such as bone and cardiovascular health, nutrition, and the psychological impact
  • Egg donation, adoption or leading a positively childless life

Networkers

Most of our members find that just talking to someone else who has been through POI is a lifeline. This is where our Networkers can help you.

Networkers are members of The Daisy Network who have volunteered to act as contacts for other members. They are not trained counsellors or medically qualified but they are a friendly listening ear and can offer support and informal advice based on their own experiences of POI.

When you join the Daisy Network you will receive a copy of our regular newsletter, 'Update' which includes details of all of The Networkers so that members can contact them if they wish.

The Daisy Network also promotes our members arranging local networking groups so that you can meet others that live in your area who have also gone through POI.

Our Newsletter - 'Update'

The Daisy Network newsletter is available via email to members only and is called Update. It is our regular check-in with members to keep you informed in any of the latest ongoing news with Daisy.

We encourage members to write in with their stories and any fundraising activities they may be undertaking. If you would like to contribute any information to Update or advertise in it, please send an email to press@daisynetwork.org.uk.

Previous copies of Update are available online in the Members Area.

Social Media

Please ‘like’ our open facebook page or follow us on twitter or find us on Instagram @thedaisynetwork to receive all our latest news and updates on POI.

Health professionals and the medical community

The Daisy Network is focused on raising awareness of POI and promoting better management of the condition amongst GPs and other medical professionals. Many of our members currently find that GPs know very little about POI, as such women find that diagnosis and subsequently receiving the best treatment can take a long time and be a very frustrating experience.

The Daisy Network is a also registered stakeholder and contributor to the latest National Institute for Health and Care Excellence (NICE) guidelines on the diagnosis and management of menopause including POI. We see this as a fantastic opportunity and landmark in the treatment and awareness of POI furthermore, Dr. Nick Panay, a longstanding patron of Daisy, is one of 15 experts in menopause care who are overseeing the development of the guideline.

 

 




Published: 10 November 2021